For our June trip to Boston, Bennett was at a tricky age. He couldn't walk yet but was ready to be on the move so containing him on the bed in the hospital room was challenging. We figured that it would be easier this time because of his ability to walk but we also thought maybe he would be old enough to present some challenges in the behavioral area. He was much much better than we expected! Yes he is more feisty than Nathan and does not put up with as much poking and prodding but overall I would say he was pretty cooperative! As anticipated it was much better with him walking. He was able to get out of the stroller and play so much more which made him a much happier kid!
Bennett's nurse for the week was Miss Courtney. She was just as nice as Miss Ivy but by the end of the week Bennett just cried when he saw her. Poor Miss Courtney. He wouldn't even get close for a picture. Hopefully she'll get the better patient next time.
Each trip to Boston gets a little bit easier. Knowing what to expect and knowing all the people is a huge benefit. For me there is even a certain comfort to being there. Mark disagreed but for me I think it is about being around people who have seen other kids with progeria. The staff at the hospital and the Devon Nicole House are all so sweet and we don't have to explain ourselves to anyone. They already know.